Where We Work

Numerous local and national organizations and networks of persons who have experienced Hansen’s disease have formed around the world over many years. They bring people together to advocate for human rights; promote inclusion in society; increase awareness of the disease and the challenges people face; and support individuals medically, psychologically and economically during and post-treatment.

Today persons who have experienced other neglected tropical diseases are joining these organizations or forming their own organizations. Click on the map below to find out where these organizations are located. If you have updates for this map, please contact us at information@ideaadvocates.org.

IDEA identifies, provides and facilitates leadership opportunities for people who have experienced Hansen's disease. Through these opportunities, individuals gain recognition as leaders and assume progressive leadership roles within their communities, countries and internationally. Following are examples.

Expert Exchanges

Where leaders from one country visit a new country to introduce IDEA's Network, help identify local leaders and establish a local and national network.

International Representation:

IDEA leaders have been appointed to leadership positions within the following organizations:

World Health Organization, Global Leprosy Program
International Federation of Anti-Leprosy Associations
International Leprosy Association
Global Partnership for Zero Leprosy
The Leprosy Mission International
American Leprosy Missions
LEPRA Society

United Nations High Commission for Human Rights

IDEA leaders testified regarding human rights, discrimination and women's issues.

Uniting to Combat Neglected Tropical Disease

Summit participation by invitation from Gates Foundation.

Wellesley Bailey Award

Nine of IDEA’s leaders have won this international award to honor individuals who have overcome personal challenges to make extraordinary contributions to society.

Shehu Sarkin Fada, IDEA Representative, Nigeria, at turbaning ceremony held when he became the chief community leader of persons who have experienced Hansen’s disease. In this role he is an official lawmaker in the emirate council in the local kingdom in Zamfara State. The turban is a traditional crown, worn by individuals with a title in the council.